Amyloidosis Support Groups (ASG)
In-person and virtual groups across the US. Toll-free helpline 866-404-7539.
amyloidosissupport.org
Home / Resources / Specialists & Support
Specialists & Support
Find specialist centres, patient communities, and the practical help you need, wherever you are in your journey with AL amyloidosis.
Find a Specialist Center
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Support Resources
Trusted resources across every area of support — from patient communities to mental health, caregiving, and financial help.
Patient Support Groups
Amyloidosis Research Consortium
PEER Link program — one-to-one peer mentoring with a trained amyloidosis patient mentor.
arci.orgAmyloidosis Foundation
Patient education, advocacy, and support events including virtual webinars with specialist clinicians.
amyloidosis.orgPatient Support Group
Quarterly meetings open to all AL and ATTR patients and families. Free to attend.
amyloidosissupport.orgMy Amyloidosis Pathfinder
ARC tool connecting patients to treatment centers and trials specific to their type and stage.
myamyloidosispathfinder.orgAL Amyloidosis Community
ARC PEER Link
One-to-one peer mentor matching with someone who has lived through a similar AL amyloidosis experience.
arci.orgAmyloidosis Research Consortium
Active patient and caregiver groups sharing lived experience, treatment journeys, and day-to-day support.
arci.orgASG Online Community
Connect with AL and ATTR patients worldwide via email, phone, and online support any time.
amyloidosissupport.orgPatient Support Group Forums
Quarterly virtual and in-person meetings open to patients, caregivers, and family members.
amyloidosissupport.orgGlobal Genes
A leading rare disease advocacy organisation connecting patients with resources, community, and research.
globalgenes.orgMental Health Support
Center for Chronic Illness
Free virtual support groups for chronic and rare disease patients, led by licensed mental health professionals.
thecenterforchronicillness.orgRareminds
Professional counselling and wellbeing resources designed specifically for the rare disease community.
rareminds.orgNAMI
National Alliance on Mental Illness — 600+ local affiliates offering free support groups across the US.
nami.orgPsychology Today Finder
Search for therapists experienced in chronic illness and serious medical diagnosis near you.
psychologytoday.com988 Crisis Lifeline
Free, confidential 24/7 support for anyone in emotional distress. Call or text 988.
988lifeline.orgCaregiver Resources
ARC PEER Link for Caregivers
Peer mentoring matched specifically for caregivers of AL amyloidosis patients.
arci.orgAmyloidosis Foundation Caregiver Binder
A practical survival guide designed to make caregiving easier at every stage of treatment.
amyloidosis.orgCenter for Chronic Illness
Free virtual caregiver support groups facilitated by licensed mental health professionals.
thecenterforchronicillness.orgNAMI Family Support Groups
Quarterly meetings open to all AL and ATTR patients and families. Free to attend.
nami.orgChive Charities
Grants helping individuals with rare medical conditions and their families access what they need.
chivecharities.org